Dex has Marfan syndrome.
He never talks about it and his body talks about it for him.

Marfan syndrome has physical dimensions, there are Marfan standards, yet what we learn from sick bodies I have never found on Dex's body. I saw there a living body, a desirable body, a desired body.
We have not learned to look at bodies that are not standardized bodies, and we look at them trying to find in them what takes them out of the norm. We look for the missing pieces, the marked pieces.

It's not the disease that defines what a body is.
It's not the gender either. Dex is non-binary and Dex is sick.

These two bodies are not connected yet they cohabit.

marked, living, surviving:
and on his skin the missing pieces are ultimately only
memories of love.






︎︎︎